MikeBrown30
Super Freak
I'm not sure if anyone has noticed that I haven't been on the boards for a while, maybe a select few people, but I have been dealing with a serious issue. Where to start....
On the 22nd of August this year I had some numbness and tingling from my waist down, 4 hours later I could not walk at all. I was hospitalised for a week, and diagnosed with Guillain Barre syndrome: https://en.wikipedia.org/wiki/Guillain_barre . Any leg movement was painful, my bladder and bowels stopped functioning, and I had lost all perception of where my legs/feet were, and what they were doing.
I was then admitted to a rehab facility, and after a couple of weeks I could take 4-5 steps, but then had to sit down because they were so fatigued. After a month and half I was able to walk normally, and went back home. A few weeks had passed, and I seemed to be recovering quite rapidly, then other symptoms started popping up. My balance has become worse, I am getting constant headaches, pain in random areas of my body, blurry vision, major fatigue (which renders me practically useless to do anything physical), increased numbness if my legs and numbness in other areas of my body, and an electrical/shocking sensation down my back and legs when bending my neck forward.
So it turns out that I have Multiple Sclerosis: https://en.wikipedia.org/wiki/Multiple_sclerosis
In hindsight, I have had symptoms since I was 18 (Blurry vision, major fatigue, sexual difficulties, cognitive, memory and speech problems ie. dyslexia and difficulty thinking of words to use). These have all gotten worse over the past few years, but I just put it down to being tired, as I was working long hours for 6 days a week in a physically demanding job.
Recently an Italian surgeon has found a connection and possible cause to Multiple Sclerosis. CCSVI (Chronic Cerebrospinal Venous Insufficiency) is a problem of narrowing of the veins in the neck, which causes blood to not drain correctly. As a result, "dirty" blood is refluxed back into the brain, which causes iron buildup/deposits. Iron in the brain is extremely toxic, and causes inflammation. The inflammation damages the cells in the brain, which provokes the immune system to respond and try to clean up/repair the damage. Dr Zamboni has tested patients with MS, other neuorological conditions, and people with no major conditions, and only found this veinous insufficiency in people with MS. It has long been thought that the immune system starts to attack the myelin sheath (coating around nerves) for no apparent reason. This venous insufficiency makes complete sense as to why damage in the brain ocurrs, and why the immune system starts to attack.
I have since been reading the www.thisisms.com forums, and there are about 50-60 people who have undergone this procedure, and have marked extremely significant improvements including: Normal bladder function, no more headaches or pain, no more numbness, major balance improvement, sharper mental clarity (Described by some as "Going from standard definition to high definition"). Some people have noticed these improvements right after the stents have been implanted into their veins. Some people, even during the procedure
Here is the link to the feature: https://watch.ctv.ca/news/w5/the-liberation-treatment
I highly recommend you spread the word about this discovery to anyone you know suffering from MS, or are caregivers for people that are suffering.
What does all this have to do with my collection? Being 22 years old, and declining rapidly, my only hope is to have this procedure performed. At this stage, collectibles are not a priority at all in my life. The procedure was being performed at Stanford in the U.S, but was shut down because they want to run clinical trials first. So my only option is to have the procedure done in Poland, as I do not want this disease to consume me, nor become wheelchair bound in the next 10 years.
Continued in next post.......
On the 22nd of August this year I had some numbness and tingling from my waist down, 4 hours later I could not walk at all. I was hospitalised for a week, and diagnosed with Guillain Barre syndrome: https://en.wikipedia.org/wiki/Guillain_barre . Any leg movement was painful, my bladder and bowels stopped functioning, and I had lost all perception of where my legs/feet were, and what they were doing.
I was then admitted to a rehab facility, and after a couple of weeks I could take 4-5 steps, but then had to sit down because they were so fatigued. After a month and half I was able to walk normally, and went back home. A few weeks had passed, and I seemed to be recovering quite rapidly, then other symptoms started popping up. My balance has become worse, I am getting constant headaches, pain in random areas of my body, blurry vision, major fatigue (which renders me practically useless to do anything physical), increased numbness if my legs and numbness in other areas of my body, and an electrical/shocking sensation down my back and legs when bending my neck forward.
So it turns out that I have Multiple Sclerosis: https://en.wikipedia.org/wiki/Multiple_sclerosis
In hindsight, I have had symptoms since I was 18 (Blurry vision, major fatigue, sexual difficulties, cognitive, memory and speech problems ie. dyslexia and difficulty thinking of words to use). These have all gotten worse over the past few years, but I just put it down to being tired, as I was working long hours for 6 days a week in a physically demanding job.
Recently an Italian surgeon has found a connection and possible cause to Multiple Sclerosis. CCSVI (Chronic Cerebrospinal Venous Insufficiency) is a problem of narrowing of the veins in the neck, which causes blood to not drain correctly. As a result, "dirty" blood is refluxed back into the brain, which causes iron buildup/deposits. Iron in the brain is extremely toxic, and causes inflammation. The inflammation damages the cells in the brain, which provokes the immune system to respond and try to clean up/repair the damage. Dr Zamboni has tested patients with MS, other neuorological conditions, and people with no major conditions, and only found this veinous insufficiency in people with MS. It has long been thought that the immune system starts to attack the myelin sheath (coating around nerves) for no apparent reason. This venous insufficiency makes complete sense as to why damage in the brain ocurrs, and why the immune system starts to attack.
I have since been reading the www.thisisms.com forums, and there are about 50-60 people who have undergone this procedure, and have marked extremely significant improvements including: Normal bladder function, no more headaches or pain, no more numbness, major balance improvement, sharper mental clarity (Described by some as "Going from standard definition to high definition"). Some people have noticed these improvements right after the stents have been implanted into their veins. Some people, even during the procedure
Here is the link to the feature: https://watch.ctv.ca/news/w5/the-liberation-treatment
I highly recommend you spread the word about this discovery to anyone you know suffering from MS, or are caregivers for people that are suffering.
What does all this have to do with my collection? Being 22 years old, and declining rapidly, my only hope is to have this procedure performed. At this stage, collectibles are not a priority at all in my life. The procedure was being performed at Stanford in the U.S, but was shut down because they want to run clinical trials first. So my only option is to have the procedure done in Poland, as I do not want this disease to consume me, nor become wheelchair bound in the next 10 years.
Continued in next post.......
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